Sunday, 19 November 2017

Final Ossio trip


Hi All

I will do an update here and a vlog post in a weeks time when I get my leg back so I can show you walking. (it has to go in for its yearly service on Monday.)

So went out again on 15th November to have a part swapped and a cast done of my knee/ upper thigh for a cosmetic cover.

DO NOT GO OUT ON 15th NOVEMBER TO HANNOVER!!!!  This just happens to be the biggest agricultural fair date where business men from all over the world come to sell their latest JCB's, tractors, produce stock etc.  Dr Aschoff failed to mention this when suggesting the date back in October. So everywhere was booked up or prices were stupid, for example I stayed in the only room that was available that wasn't a hostel. A Premier class German version with single rooms no breakfast one night usually costs 58 euros.  That date cost me 250 euros!!!! Then there was the flight out and back. Normally £250 now £450.!

I met with the technical team at 10am had the part swapped and a plaster cast done of my leg. Got the all clear from Dr Aschoff told to come back and see him in 6 months for a review and was out by 11am.  Most expensive Drs appointment ever! :)

So its 8 weeks since I had the implant, I couldn't take a step without my crutches during the first week, and it was painful to step through.

I kept walking though, knowing that I had to build up the strength in my thigh as I am no longer doing the swing through action to take a step, normally using my hip.
But now I just swing forward with my thigh like you would normally when you walk.
Having not done this for 5yrs its hard to break the habit. But the best way I have found is once the pain has eased when you put your weight through your foot. (around 5th week.) walk around the house with just a walking stick.  Hold the walking stick in your hand next to your 'real' leg, so that when you take a step you are forced to swing your false leg out and put it down with out the stick next to it to take the weight. Do this slowly just so you get used to the motion.

DO NOT try going down slopes or steps foot over foot yet, that still hurts and you are at risk of twisting your ankle which is still a big no, until at least 12 months.

I go down slopes sideways shuffle and go up and down steps like I used to with my socket leg so 'bad' first then good going down and reverse going up. Remember the mantra Bad to hell, good to heaven if your wondering what to put first.

I can currently lurch around the house without any sticks (you didn't read that Dr Aschoff!) 'Not recommended until at least 6 months in'.  But I have no pain and take it easy and when outside if its short distances like to the garage I use one stick. If walking around town then two sticks.

Its so weird when I put the leg on as I am so used to putting on all the rubber liners and stickers and Velcro, then having to wait 10mins to see if my leg is sore today to stand on and walk until I'm comfortable. Now I put it on and....nothing, just walk.

I do have another neuroma that has developed at the end where some scar tissue is and its very sore to push on but I can't feel it when I walk. Its only a problem if I have a plaster/gauze covering the lump of scar tissue and it rubs it when I walk making it tender. (I still have to wear gauze and plasters for oozing) In the new year I am going to make an appointment with Dr Dewar my plastic surgeon at NHS to cut that out and also tidy up some loose skin around the back of my thigh that I no longer need for 'socket padding.'

There are also other habits I don't need to do anymore like lifting up the toilet seat to pee. The reason for doing this was the hard plastic socket would scratch/mark the toilet seat and on one occasion when I sat down too hard knock it sideways and snap it off the back.

I bought size 10 knickers! rather than 14 because theres no socket there now to arse chew my knickers up my crack when I walk. I bought t-shirts that are fitted, and gave my size 12 baggy ones to charity as I no longer have to hide the sticking out hip I had with the socket and the ridge part by my bum.  I can wear tight pants again! BEHOLD my bottom and waist!

For the first time in over 5yrs I am actually getting my body confidence back and like what I see in the mirror. Yes it is very very expensive and if your insurance is not going to cover it I'm sorry but Ossio integration is the best thing I have had done and wish I had done it earlier.

So you will need £40,000 this is for everything, flights, hotel stays, xrays, procedures after care etc etc.

Dr Aschoff told me there are two others who are just about to start this journey and I said they are more than welcome to ask me for advice. But bare in mind everyone is different, your body is different to mine, your accident/ injury could look different to mine. You may need the whole 6/12 months to recover. You may have pain all the way through or get an infection or may not. You might have a lot of excess fat on your thigh that means you will leak for longer, maybe permanently.
Just things to bare in mind, but I hope things go well for you and I am here for any questions and support.

I will still keep updating this blog and my vlog with my progress, my aim is to get a video of my walking 'normally' with out a stick down my drive.

So till next time take care xxxx

Sunday, 22 October 2017

Ossio Vlog Update Part 11


Hi all

I got back from my 4th visit to Hannover on Friday 20th only went for one day this time to have the metal parts fitted on the outside of my stumpy.
They added new bits on with screws, and a rubber hammer! It vibrated every time the struck the end.
It didn't hurt just felt really uncomfortable. Like someone bashing your funny bone with a rubber hammer.
When I first stood up I thought it would hurt, that I would feel the pressure through my bone as I pressed down but I didn't.
What I did feel and still do when I try to push down and then lift up (transfer weight from foot to foot) is a sharp trapped nerve pain. I had this when I first had my big socket leg and was learning to walk for the first time.
So I just have to slowly keep applying pressure and force my nerves to either tough up or move out of the way! :)
I'm not allowed to walk with out my crutches, I cant do that anyway but stay on them for 6 months.
The weeping at the end will get heavy I have been told because I'm upright and basically squeezing water out. This should stop in time.
The leg feels very heavy but again my first leg with socket felt really heavy its just something I know with time I will get used to.
It also looks awful, but I told you it doesn't look nice but I have got rid of the socket!!!
The technical team in Hannover are making a 3D printed shield for the top part to match my ankle cover so it will look better when I wear shorts/skirts.
So at the moment I have the leg off over this weekend as the inside around the rim at the front is bruised due to the weight and its only been 3 weeks since the implant. So still very tender.
I will put the leg on for a small bit each day stand up and transfer my weight then take it off to allow the nerves to settle.
I go back to Hannover in 4 weeks for a part change and the thigh cover and then I get transferred over to the team at PACE to do physio.
But I will wait until January to book this in, give my leg time to heal and enjoy enjoy the upcoming festivities.

Below is a link to my latest Vlog

Wednesday, 27 September 2017

Upgrade Complete EXTERMINATE!!!


Hi all

Please subscribe to my Vlog at Gothic flamingo girl for updates on my Ossio implant.
I will do a quick summary here, but theres more detail in my Vlog.

OK so when we last spoke I was all nervous about going to Germany. I went met with Dr Aschoff and his team and I had the first operation in August cutting 5cm off the end of my stumpy and bashing a metal rod all the way up into the full length of my femur bone. (I was of course unconscious through out this bit.) :)   
It was painful the next few days, hard to sleep I was sick on the pain killers, but thankfully not screaming like the exorcist.
also I got a private room so no dementia patients throwing their German Knickers at me.

They then stitched up the end and I went home again for a few weeks to let everything settle down.
Then I went back again on 20th September to have the stitches taken out and a small metal rod and black plastic connector put on the bottom (outside).
This was not painful at all and still isn't, its a bit like having a giant ear piercing

Personally I think it looks bloody awful, like Ive impaled myself with a chair leg but it gets rid of those liners and socket so there has to be a compromise. I'm getting a friend to make me a stumpy cover in leather and lace so hopefully it wont look too bad when I wear shorts/skirts.

I now have to wait 3 weeks and then go back again on 20th October, I have been told to take my crutches with me. This time they will put on a long connector so that the knees are aligned and put on my leg (which they have over there.)

They said I will be able to stand but that's it for a good few months as the bone is still fusing with the metal implant. It wont slide out but there is a risk of it twisting if I get my foot caught or fall.
It can take up to 12 months for the bone to grow over the implant and become secure. But even then I have to take it easy.

Below is the link to the latest Vlog from my 2nd operation. If you have any questions please ask. x
Dyed my hair red whilst recovering to cheer me up, also got back to exercises too!

Monday, 28 August 2017

Nearly time for Ossio


Hi All

Well only two more sleeps to go, i'm nervous which is to be expected i'm going to have a big operation in a foreign hospital. But on the surface i'm positive and can't wait to get rid off the plastic socket top that sticks out on my hip when I walk, so I can't wear any tight fitting clothes.
Also I think i'm going to burn the rubber liner, that caused sweat burns and chaffing cuts.
I won't have to put those stupid pink sponge plasters around my crotch anymore to stop rubbing if I did any long distance walking.
I wont have to shave off my pubic hair anymore, which I did to stop the plasters crabbing a handful when I walked and pulling them out.
I won't have to fiddle about with piece of paper stuck down the side of the Velcro fastening in the socket and my grey liner to get my foot straight so it doesn't spin when I walk.
All these good things, but my subconscious has thought na feck all that inside i'm gonna show you how your really feeling:

1)Not able to sleep until 12-1am
2)waking up at 6am!
3)Bad stomach ulcer flared up causing very bad chest pains, back pain, nausea, constant heart burn and indigestion.  I started taking my VSL3 Probiotic and some Protopump inhibitors (stops acid produce) and eating bananas (so after 6wks ulcer should be gone) plus after the operation they will put me on a course of anti-biotics to ensure I don't get an infection in my implant. That should deal with any helabacta ulcer causing bugs too. #alwayslookonthebrightside.

I'm going to do a video diary of my trip, and what goes on in the hospital not just for something to do but to keep me sane :)
I hope to god I don't have an allergic reaction to the meds and hallucinate again when I wake up after the operation. Well it will be entertaining at least on the vlog, if I do hallucinate I will video secretly what I see and tell you what I see, and you can see what is really there. Might as well get some fun out of it.

So this is me signing off for now see you on the other side in 2 weeks.

Take care.

Friday, 28 July 2017

Vlog See my spud on the screen!


Hi All

I have done my vlog as previously mentioned here is the link.

There are 4 so far and will be more charting my Ossio journey. It's all very scary stuff but as always I will be as honest and open as I can. x

Also my business has finally started up.  come have a look.
Gothic & Apothecary themed teas and containers. :)

Saturday, 8 July 2017

Cyborg Sue


Hi all

Well I haven't got round to doing my vlog yet, but I will I have been really busy trying to get my tea business up and running.

What's happened so far:

1) contacted PACE saying I wanted to go ahead with Ossio Intergration, they gave me the name of the German Dr Hoist.

2) I emailed Hoist introducing myself and he's been very friendly and requested x-rays and pictures of my stumpy.  Luckily I had, had xrays done recently due to my neuromas so made an appointment with my plastic surgeon to get them.

3) 2 weeks later got in to see Mr Dewar whilst in the meeting he emailed me xrays and MRI scans to my home. (this was a pre booked post op review anyway.) these are the xrays I posted in my last blog.

4) got home took pictures of my stumpy and compressed and sent everything to Dr Hoist, he was happy replied the next day that I did not need the 'thinning down tissue procedure' that would take the operation over 2yrs. That I was an ideal candidate and the whole thing would be sorted in 6 weeks!

I was totally shocked at this news and this made me re think things. If I went ahead then if all went well by the end of this year I would have a new leg and be socket free!

So I went and had a good long think weighed up the pros and cons and thought fook it go for it!

So I've booked a consultation with Dr Hoist in Germany on Thursday 13th June. ARGH!!!

Cost so far:

Train to Manchester Airport - Open return with disability pass £17.75
flight to Hanover - £303  (this is flights for me and my dad out on 12th return 13th expidia)
Taxi to hospital from airport £? will fill in on return
overnight stay in hotel £76  (IBIS medical park - near hosp app)
Taxi from Huddersfield rail station to home £will fill in on return

Will make a list of questions to ask and let you know how I get on.

Tuesday, 20 June 2017

The long road to Osio

20th June 2017

Hello all

Don't look at me like that, yes I had said in previous blogs that I had explored Osio Intergration and rejected the idea. Because of the way the finished thing looked and the 'leakage' issue.
But I had to have yet another neuroma and a cyst removed from the stumpy, and was told this will be a yearly thing.
Also I got another sweat blister on the end of the stumpy and I wasn't even exerting myself.
So enough is enough, I spoke to my plastic surgeon and my private prosthatist at PACE to get the ball rolling.
I've also decided to do a vlog as there isn't much on youtube about anyone going through this from start to finish. Who to contact, the costs, what the operation looks like, physio etc etc.
I know the risks, you can get an infection in the end that can travel up the bone, resulting in you having to have your bone cut back up to the point where the steel pin was inserted.
If I have a bad fall and the femur cracks, again leg cut shorter, and in my case it would be nearly all my leg and I would either have to wear a permanent belt to hold my leg on or that horrible over the shoulder strap device.
Also if I do fall and land on my knees, there is a fail safe. The pin that is at the entrance to the top takes the pressure and breaks instead. This is good, but then I have a broken pin that I have to get on a plane to Germany to fix.
That's the other down side, this is still a relatively new procedure. There are experts in Australia, Holland and Germany. There are consultants in London but they are a branch of the Australians.
So I've decided to go to Germany.
Also this is not on the NHS yet, and I've been given a rough guide price of 30k, yep 30 grand for everything, the operation, the physio, the stay in hospital and flights to Germany.
This is what I've been told will happen:

1) See consultant in Germany, if you need to you will have a date for an operation to cut back and thin out the end off your stump as close to the bone as possible for better pin connection.
(I don't need this part that's why my plastic surgeon said I was ideal.)

2)You have operation number two, they open up the end of your stumpy, take out the marrow in your femur, and screw in a pin then sow up the pin inside and leave you for a couple of months. This is so the bone grows around the pin securing it.

3) Then if no complications i.e rejection/infection the end is opened up and the outer pin is put on that the leg will finally attach too.

4) You are then months in physio having small weights put on the end of the outer pin to get used to the weight of the leg. You are also taught to press down on it too so you take the weight through the bone.

5) Finally the leg is clipped on and I will be re-taught how to walk, as I have been taught to swing from my hip with a socket leg, now I have to try to walk normal again.

6) Invent some sexy upper leg coverings to hide the freddy Kruger penis leg so I can wear shorts.

all In all they say 2 years. which isn't too bad if you think if I do nothing I will be in hospital every year with neuromas, which I won't get as they are like pressure blisters internally. So as the weight is now through my femur like it should be they wont flare up.

I've decided to have this operation after my 40th (late 2019) As I want to do something fun for that and don't want to be in my chair.

Below is an xray and an MRI of my leg I was given to pass on to the German Osio surgeon.
I find it so fascinating, in the xrays you can see my intestines, and the MRI looks like a slice of meat :)