Saturday, 20 January 2018

Ossio Part 12


Hi all attached is the link to the final part of my Ossio Vlog. I say final but I will be doing updates of my progress like physio and anything else that crops up.

As I have said in previous posts I haven't been well hence the delay in producing this and why I look like a wild haired baggy eyed pigmi.

Still have kidney stones, still have I.C still plodding on as I have to.

Take care x

Saturday, 30 December 2017



Hi All

Sorry I haven't posted up a new youtube vlog with me walking yet.
First off as soon as I got back from Germany they wanted my leg to go off for servicing.
Then I didn't get a loaner unit until two weeks later. Then I was rushing around sorting out Christmas presents and a big rush on orders for my business.
Then yesterday I went to A&E after having really, really bad stabbing pains in my lower left side.
I was fine, had been since my operation. Yes I had a mini IBS attack in hospital and at the airport that time but that was down to trigger foods.
I had been having a few whiskeys over the festive season and a few mince pies (free from gluten & dairy ones). But my healthy choice of foods stayed the same. No processed rubbish, plenty of fruit and veg. No sweets, no sugar or salty foods.
Then wham! agony, I was so scared I though my appendix had burst (I have no idea where that is in the body by the way)
But this wasn't bowel/IBS wind pain and wasn't I.C Bladder burn, this was something completely different and I thought it must be severe cramp. Then after 20 mins it had worn off and reduced to a low pulled muscle feeling. Then a few seconds later it slowly built up again to the point where I was in tears thinking what the hell!
I was in so much pain that i called 999. I have never done this before ever, especially this time of year when i know emergency services are stretched.
But i was so scared and in pain, but the lady told me that i would have had a 2hr wait as my condition did not sound life threatening. So i said I'd get a taxi, i was in so much pain at this point i couldn't scroll through my phone to get the number so just did what any scared child would do and called my mum on speed dial.
I felt really stupid and she of course went into mum panic mode and called my brother inlaw to pick me up. She then got in a taxi with my dad and headed to the hospital saying she would meet us there, but also called my sister as well (who is heavily pregnant) who got in her car and went there.
By the time we had amassed on the A&E unit my pain had gone down to a dull ache again, i felt really really stupid. Especially with having all my family there Christmas week looking at me.
In the end i convinced them to go and my mum stayed with me whilst i had tests.
I then had to come back the following day for a CT scan and that's when they found out i had two kidney stones 3-4mm in size stuck up by the exit of my left kidney.
The agony i felt was the stone moving out of the kidney where it had formed and squeezing down the thin pee tube. There was pee blocked up behind it but it did not warrant surgery as the stones they said were small enough to pass down given time and lots of water on their own.
I just had to go home and munch pain killers like smarties and grin and bare it until they pass.
I'm to go back in 2 weeks for another x-ray and tests to see if they have moved/gone. I'm also going to see if i can get one when they come out because i found out there are different types.
Not just the common Calcium ones, but ones made by too much acids or a UTI infection, one that is hereditary and one that is rare and usually only in men (i bet i have that one).
Each stone requires a change in diet to stop it coming back, or medical treatment etc so i need to know what to do because i am not having reoccurring Kidney fecking stones to add to my list!!
What really pisses me off is that for the past year or so i have been on a really healthy eating routine, not a diet. But healthy life style changes. I'm mostly vegetarian, i have quorn as meat alternative. I don't have dairy like cheese (because i don't like the greasy taste anymore)
I don't have fried foods, pasties etc and don't eat sweets and cakes etc. I might have a treat at a birthday meal but that's it. Nothing to warrant fecking Kidney stones!!!
Well its new years eve tomorrow, no booze or even coffee for me :( 

Sunday, 19 November 2017

Final Ossio trip


Hi All

I will do an update here and a vlog post in a weeks time when I get my leg back so I can show you walking. (it has to go in for its yearly service on Monday.)

So went out again on 15th November to have a part swapped and a cast done of my knee/ upper thigh for a cosmetic cover.

DO NOT GO OUT ON 15th NOVEMBER TO HANNOVER!!!!  This just happens to be the biggest agricultural fair date where business men from all over the world come to sell their latest JCB's, tractors, produce stock etc.  Dr Aschoff failed to mention this when suggesting the date back in October. So everywhere was booked up or prices were stupid, for example I stayed in the only room that was available that wasn't a hostel. A Premier class German version with single rooms no breakfast one night usually costs 58 euros.  That date cost me 250 euros!!!! Then there was the flight out and back. Normally £250 now £450.!

I met with the technical team at 10am had the part swapped and a plaster cast done of my leg. Got the all clear from Dr Aschoff told to come back and see him in 6 months for a review and was out by 11am.  Most expensive Drs appointment ever! :)

So its 8 weeks since I had the implant, I couldn't take a step without my crutches during the first week, and it was painful to step through.

I kept walking though, knowing that I had to build up the strength in my thigh as I am no longer doing the swing through action to take a step, normally using my hip.
But now I just swing forward with my thigh like you would normally when you walk.
Having not done this for 5yrs its hard to break the habit. But the best way I have found is once the pain has eased when you put your weight through your foot. (around 5th week.) walk around the house with just a walking stick.  Hold the walking stick in your hand next to your 'real' leg, so that when you take a step you are forced to swing your false leg out and put it down with out the stick next to it to take the weight. Do this slowly just so you get used to the motion.

DO NOT try going down slopes or steps foot over foot yet, that still hurts and you are at risk of twisting your ankle which is still a big no, until at least 12 months.

I go down slopes sideways shuffle and go up and down steps like I used to with my socket leg so 'bad' first then good going down and reverse going up. Remember the mantra Bad to hell, good to heaven if your wondering what to put first.

I can currently lurch around the house without any sticks (you didn't read that Dr Aschoff!) 'Not recommended until at least 6 months in'.  But I have no pain and take it easy and when outside if its short distances like to the garage I use one stick. If walking around town then two sticks.

Its so weird when I put the leg on as I am so used to putting on all the rubber liners and stickers and Velcro, then having to wait 10mins to see if my leg is sore today to stand on and walk until I'm comfortable. Now I put it on and....nothing, just walk.

I do have another neuroma that has developed at the end where some scar tissue is and its very sore to push on but I can't feel it when I walk. Its only a problem if I have a plaster/gauze covering the lump of scar tissue and it rubs it when I walk making it tender. (I still have to wear gauze and plasters for oozing) In the new year I am going to make an appointment with Dr Dewar my plastic surgeon at NHS to cut that out and also tidy up some loose skin around the back of my thigh that I no longer need for 'socket padding.'

There are also other habits I don't need to do anymore like lifting up the toilet seat to pee. The reason for doing this was the hard plastic socket would scratch/mark the toilet seat and on one occasion when I sat down too hard knock it sideways and snap it off the back.

I bought size 10 knickers! rather than 14 because theres no socket there now to arse chew my knickers up my crack when I walk. I bought t-shirts that are fitted, and gave my size 12 baggy ones to charity as I no longer have to hide the sticking out hip I had with the socket and the ridge part by my bum.  I can wear tight pants again! BEHOLD my bottom and waist!

For the first time in over 5yrs I am actually getting my body confidence back and like what I see in the mirror. Yes it is very very expensive and if your insurance is not going to cover it I'm sorry but Ossio integration is the best thing I have had done and wish I had done it earlier.

So you will need £40,000 this is for everything, flights, hotel stays, xrays, procedures after care etc etc.

Dr Aschoff told me there are two others who are just about to start this journey and I said they are more than welcome to ask me for advice. But bare in mind everyone is different, your body is different to mine, your accident/ injury could look different to mine. You may need the whole 6/12 months to recover. You may have pain all the way through or get an infection or may not. You might have a lot of excess fat on your thigh that means you will leak for longer, maybe permanently.
Just things to bare in mind, but I hope things go well for you and I am here for any questions and support.

I will still keep updating this blog and my vlog with my progress, my aim is to get a video of my walking 'normally' with out a stick down my drive.

So till next time take care xxxx

Sunday, 22 October 2017

Ossio Vlog Update Part 11


Hi all

I got back from my 4th visit to Hannover on Friday 20th only went for one day this time to have the metal parts fitted on the outside of my stumpy.
They added new bits on with screws, and a rubber hammer! It vibrated every time the struck the end.
It didn't hurt just felt really uncomfortable. Like someone bashing your funny bone with a rubber hammer.
When I first stood up I thought it would hurt, that I would feel the pressure through my bone as I pressed down but I didn't.
What I did feel and still do when I try to push down and then lift up (transfer weight from foot to foot) is a sharp trapped nerve pain. I had this when I first had my big socket leg and was learning to walk for the first time.
So I just have to slowly keep applying pressure and force my nerves to either tough up or move out of the way! :)
I'm not allowed to walk with out my crutches, I cant do that anyway but stay on them for 6 months.
The weeping at the end will get heavy I have been told because I'm upright and basically squeezing water out. This should stop in time.
The leg feels very heavy but again my first leg with socket felt really heavy its just something I know with time I will get used to.
It also looks awful, but I told you it doesn't look nice but I have got rid of the socket!!!
The technical team in Hannover are making a 3D printed shield for the top part to match my ankle cover so it will look better when I wear shorts/skirts.
So at the moment I have the leg off over this weekend as the inside around the rim at the front is bruised due to the weight and its only been 3 weeks since the implant. So still very tender.
I will put the leg on for a small bit each day stand up and transfer my weight then take it off to allow the nerves to settle.
I go back to Hannover in 4 weeks for a part change and the thigh cover and then I get transferred over to the team at PACE to do physio.
But I will wait until January to book this in, give my leg time to heal and enjoy enjoy the upcoming festivities.

Below is a link to my latest Vlog

Wednesday, 27 September 2017

Upgrade Complete EXTERMINATE!!!


Hi all

Please subscribe to my Vlog at Gothic flamingo girl for updates on my Ossio implant.
I will do a quick summary here, but theres more detail in my Vlog.

OK so when we last spoke I was all nervous about going to Germany. I went met with Dr Aschoff and his team and I had the first operation in August cutting 5cm off the end of my stumpy and bashing a metal rod all the way up into the full length of my femur bone. (I was of course unconscious through out this bit.) :)   
It was painful the next few days, hard to sleep I was sick on the pain killers, but thankfully not screaming like the exorcist.
also I got a private room so no dementia patients throwing their German Knickers at me.

They then stitched up the end and I went home again for a few weeks to let everything settle down.
Then I went back again on 20th September to have the stitches taken out and a small metal rod and black plastic connector put on the bottom (outside).
This was not painful at all and still isn't, its a bit like having a giant ear piercing

Personally I think it looks bloody awful, like Ive impaled myself with a chair leg but it gets rid of those liners and socket so there has to be a compromise. I'm getting a friend to make me a stumpy cover in leather and lace so hopefully it wont look too bad when I wear shorts/skirts.

I now have to wait 3 weeks and then go back again on 20th October, I have been told to take my crutches with me. This time they will put on a long connector so that the knees are aligned and put on my leg (which they have over there.)

They said I will be able to stand but that's it for a good few months as the bone is still fusing with the metal implant. It wont slide out but there is a risk of it twisting if I get my foot caught or fall.
It can take up to 12 months for the bone to grow over the implant and become secure. But even then I have to take it easy.

Below is the link to the latest Vlog from my 2nd operation. If you have any questions please ask. x
Dyed my hair red whilst recovering to cheer me up, also got back to exercises too!

Monday, 28 August 2017

Nearly time for Ossio


Hi All

Well only two more sleeps to go, i'm nervous which is to be expected i'm going to have a big operation in a foreign hospital. But on the surface i'm positive and can't wait to get rid off the plastic socket top that sticks out on my hip when I walk, so I can't wear any tight fitting clothes.
Also I think i'm going to burn the rubber liner, that caused sweat burns and chaffing cuts.
I won't have to put those stupid pink sponge plasters around my crotch anymore to stop rubbing if I did any long distance walking.
I wont have to shave off my pubic hair anymore, which I did to stop the plasters crabbing a handful when I walked and pulling them out.
I won't have to fiddle about with piece of paper stuck down the side of the Velcro fastening in the socket and my grey liner to get my foot straight so it doesn't spin when I walk.
All these good things, but my subconscious has thought na feck all that inside i'm gonna show you how your really feeling:

1)Not able to sleep until 12-1am
2)waking up at 6am!
3)Bad stomach ulcer flared up causing very bad chest pains, back pain, nausea, constant heart burn and indigestion.  I started taking my VSL3 Probiotic and some Protopump inhibitors (stops acid produce) and eating bananas (so after 6wks ulcer should be gone) plus after the operation they will put me on a course of anti-biotics to ensure I don't get an infection in my implant. That should deal with any helabacta ulcer causing bugs too. #alwayslookonthebrightside.

I'm going to do a video diary of my trip, and what goes on in the hospital not just for something to do but to keep me sane :)
I hope to god I don't have an allergic reaction to the meds and hallucinate again when I wake up after the operation. Well it will be entertaining at least on the vlog, if I do hallucinate I will video secretly what I see and tell you what I see, and you can see what is really there. Might as well get some fun out of it.

So this is me signing off for now see you on the other side in 2 weeks.

Take care.

Friday, 28 July 2017

Vlog See my spud on the screen!


Hi All

I have done my vlog as previously mentioned here is the link.

There are 4 so far and will be more charting my Ossio journey. It's all very scary stuff but as always I will be as honest and open as I can. x

Also my business has finally started up.  come have a look.
Gothic & Apothecary themed teas and containers. :)