Wednesday, 27 September 2017

Upgrade Complete EXTERMINATE!!!

27/09/17

Hi all


Please subscribe to my Vlog at Gothic flamingo girl for updates on my Ossio implant.
I will do a quick summary here, but theres more detail in my Vlog.

OK so when we last spoke I was all nervous about going to Germany. I went met with Dr Aschoff and his team and I had the first operation in August cutting 5cm off the end of my stumpy and bashing a metal rod all the way up into the full length of my femur bone. (I was of course unconscious through out this bit.) :)   
It was painful the next few days, hard to sleep I was sick on the pain killers, but thankfully not screaming like the exorcist.
also I got a private room so no dementia patients throwing their German Knickers at me.

They then stitched up the end and I went home again for a few weeks to let everything settle down.
Then I went back again on 20th September to have the stitches taken out and a small metal rod and black plastic connector put on the bottom (outside).
This was not painful at all and still isn't, its a bit like having a giant ear piercing

Personally I think it looks bloody awful, like Ive impaled myself with a chair leg but it gets rid of those liners and socket so there has to be a compromise. I'm getting a friend to make me a stumpy cover in leather and lace so hopefully it wont look too bad when I wear shorts/skirts.

I now have to wait 3 weeks and then go back again on 20th October, I have been told to take my crutches with me. This time they will put on a long connector so that the knees are aligned and put on my leg (which they have over there.)

They said I will be able to stand but that's it for a good few months as the bone is still fusing with the metal implant. It wont slide out but there is a risk of it twisting if I get my foot caught or fall.
It can take up to 12 months for the bone to grow over the implant and become secure. But even then I have to take it easy.

Below is the link to the latest Vlog from my 2nd operation. If you have any questions please ask. x

https://youtu.be/9r51xNT8sFQ
Dyed my hair red whilst recovering to cheer me up, also got back to exercises too!
 

Monday, 28 August 2017

Nearly time for Ossio

28/08/17

Hi All


Well only two more sleeps to go, i'm nervous which is to be expected i'm going to have a big operation in a foreign hospital. But on the surface i'm positive and can't wait to get rid off the plastic socket top that sticks out on my hip when I walk, so I can't wear any tight fitting clothes.
Also I think i'm going to burn the rubber liner, that caused sweat burns and chaffing cuts.
I won't have to put those stupid pink sponge plasters around my crotch anymore to stop rubbing if I did any long distance walking.
I wont have to shave off my pubic hair anymore, which I did to stop the plasters crabbing a handful when I walked and pulling them out.
I won't have to fiddle about with piece of paper stuck down the side of the Velcro fastening in the socket and my grey liner to get my foot straight so it doesn't spin when I walk.
All these good things, but my subconscious has thought na feck all that inside i'm gonna show you how your really feeling:

1)Not able to sleep until 12-1am
2)waking up at 6am!
3)Bad stomach ulcer flared up causing very bad chest pains, back pain, nausea, constant heart burn and indigestion.  I started taking my VSL3 Probiotic and some Protopump inhibitors (stops acid produce) and eating bananas (so after 6wks ulcer should be gone) plus after the operation they will put me on a course of anti-biotics to ensure I don't get an infection in my implant. That should deal with any helabacta ulcer causing bugs too. #alwayslookonthebrightside.

I'm going to do a video diary of my trip, and what goes on in the hospital not just for something to do but to keep me sane :)
I hope to god I don't have an allergic reaction to the meds and hallucinate again when I wake up after the operation. Well it will be entertaining at least on the vlog, if I do hallucinate I will video secretly what I see and tell you what I see, and you can see what is really there. Might as well get some fun out of it.

So this is me signing off for now see you on the other side in 2 weeks.

Take care.


Friday, 28 July 2017

Vlog See my spud on the screen!


28.7.17

Hi All


I have done my vlog as previously mentioned here is the link.

https://youtu.be/4QoN_VOjNPA

There are 4 so far and will be more charting my Ossio journey. It's all very scary stuff but as always I will be as honest and open as I can. x

Also my business has finally started up. www.monstermashteas.co.uk  come have a look.
Gothic & Apothecary themed teas and containers. :)


Saturday, 8 July 2017

Cyborg Sue

08/07/17

Hi all

Well I haven't got round to doing my vlog yet, but I will I have been really busy trying to get my tea business up and running.

What's happened so far:

1) contacted PACE saying I wanted to go ahead with Ossio Intergration, they gave me the name of the German Dr Hoist.

2) I emailed Hoist introducing myself and he's been very friendly and requested x-rays and pictures of my stumpy.  Luckily I had, had xrays done recently due to my neuromas so made an appointment with my plastic surgeon to get them.

3) 2 weeks later got in to see Mr Dewar whilst in the meeting he emailed me xrays and MRI scans to my home. (this was a pre booked post op review anyway.) these are the xrays I posted in my last blog.

4) got home took pictures of my stumpy and compressed and sent everything to Dr Hoist, he was happy replied the next day that I did not need the 'thinning down tissue procedure' that would take the operation over 2yrs. That I was an ideal candidate and the whole thing would be sorted in 6 weeks!

I was totally shocked at this news and this made me re think things. If I went ahead then if all went well by the end of this year I would have a new leg and be socket free!

So I went and had a good long think weighed up the pros and cons and thought fook it go for it!

So I've booked a consultation with Dr Hoist in Germany on Thursday 13th June. ARGH!!!

Cost so far:

Train to Manchester Airport - Open return with disability pass £17.75
flight to Hanover - £303  (this is flights for me and my dad out on 12th return 13th expidia)
Taxi to hospital from airport £? will fill in on return
overnight stay in hotel £76  (IBIS medical park - near hosp app)
Taxi from Huddersfield rail station to home £will fill in on return

Will make a list of questions to ask and let you know how I get on.

Tuesday, 20 June 2017

The long road to Osio

20th June 2017

Hello all

Don't look at me like that, yes I had said in previous blogs that I had explored Osio Intergration and rejected the idea. Because of the way the finished thing looked and the 'leakage' issue.
But I had to have yet another neuroma and a cyst removed from the stumpy, and was told this will be a yearly thing.
Also I got another sweat blister on the end of the stumpy and I wasn't even exerting myself.
So enough is enough, I spoke to my plastic surgeon and my private prosthatist at PACE to get the ball rolling.
I've also decided to do a vlog as there isn't much on youtube about anyone going through this from start to finish. Who to contact, the costs, what the operation looks like, physio etc etc.
I know the risks, you can get an infection in the end that can travel up the bone, resulting in you having to have your bone cut back up to the point where the steel pin was inserted.
If I have a bad fall and the femur cracks, again leg cut shorter, and in my case it would be nearly all my leg and I would either have to wear a permanent belt to hold my leg on or that horrible over the shoulder strap device.
Also if I do fall and land on my knees, there is a fail safe. The pin that is at the entrance to the top takes the pressure and breaks instead. This is good, but then I have a broken pin that I have to get on a plane to Germany to fix.
That's the other down side, this is still a relatively new procedure. There are experts in Australia, Holland and Germany. There are consultants in London but they are a branch of the Australians.
So I've decided to go to Germany.
Also this is not on the NHS yet, and I've been given a rough guide price of 30k, yep 30 grand for everything, the operation, the physio, the stay in hospital and flights to Germany.
This is what I've been told will happen:

1) See consultant in Germany, if you need to you will have a date for an operation to cut back and thin out the end off your stump as close to the bone as possible for better pin connection.
(I don't need this part that's why my plastic surgeon said I was ideal.)

2)You have operation number two, they open up the end of your stumpy, take out the marrow in your femur, and screw in a pin then sow up the pin inside and leave you for a couple of months. This is so the bone grows around the pin securing it.

3) Then if no complications i.e rejection/infection the end is opened up and the outer pin is put on that the leg will finally attach too.

4) You are then months in physio having small weights put on the end of the outer pin to get used to the weight of the leg. You are also taught to press down on it too so you take the weight through the bone.

5) Finally the leg is clipped on and I will be re-taught how to walk, as I have been taught to swing from my hip with a socket leg, now I have to try to walk normal again.

6) Invent some sexy upper leg coverings to hide the freddy Kruger penis leg so I can wear shorts.

all In all they say 2 years. which isn't too bad if you think if I do nothing I will be in hospital every year with neuromas, which I won't get as they are like pressure blisters internally. So as the weight is now through my femur like it should be they wont flare up.

I've decided to have this operation after my 40th (late 2019) As I want to do something fun for that and don't want to be in my chair.

Below is an xray and an MRI of my leg I was given to pass on to the German Osio surgeon.
I find it so fascinating, in the xrays you can see my intestines, and the MRI looks like a slice of meat :) 



Saturday, 20 May 2017

3 little piggis

20/05/17

Hi All

Well three weeks after my toes operation and I'm walking around again.
The Deadpool genes have kicked in once more!
It's still sore to walk at speed and I can't flex my foot, so no standing on tip toes etc.
But I can walk very slowly with my stick.

I had the end bone taken out of the middle and 2nd to little toe, and the nail bed removed from the little toe. (see picks below)




I now have 3 little toes instead of one, bonus is less likely to catch on furniture :)

Now next Saturday i'm having my 15th! operation on my stumpy (neuromas removed again)
I should get a free coffee or something.

I actually look forward to being knocked out because I get a few hours of deep sleep.
I even play a game with myself now and try to stay awake, or even see how far I can count down.
I've been knocked out that much that I have a scar on the back of both hands where the cannula goes in.

Hey ho, the really frustrating thing is i'm going to be in my pram over summer.
I can't get in the garden, or go on holiday. Well I can but i'll be in bandages and I know my mood will go down as I don't like being in my pram.
I haven't even got round to trying out my new tilted foot yet with heeled shoes.

I've also got the start up of my new business. That should be interesting seeing how I cope in my pram, packing goods and getting stock out of the garage. Well let's deal with one problem at a time.
Next thing stumpy operation.

Wish me luck.


Sunday, 30 April 2017

5 Years on!!!!



30/04/17

Hi all

Well it's five years! I remember watching a youtube clip of an indian man who had lost his leg and was walking down the street with his friends with out a stick. It had taken him 5 yrs to get to that point and I was determined that would also be my target years.

Since my accident I have been making a list and I will continue to add to it.
It sounds morbid to start off with but hear me out. It's a list of all the good things I have experienced after my accident date. If I had a died that day I wouldn't have been here to do/see/ experience them.
So whenever I am down or when I get to another year. I look at the list and it inspires me to go on living making that list longer


Held the keys to my very own bungalow.
Bought gothic furniture for the house
Learnt how to cross stitch complicated patterns
Road on a mobility scooter for first time.
Watched lots of movies at pictures with sister
Went to London
Saw the natural history museum
Got one quarter way up Ben Nevis
Flew in a plane
visited Edinburgh
Tried an avocado for the first time
hosted a roleplay game at my home
cooked Christmas dinner in new home for family
held a newt in my hands
Was a bridesmaid at my sisters wedding
flew to America
went to Disneyland
got to hug Big hero 6
went to universal studios
sang singing In the rain down fake broadway with my dad whilst others ran for cover.
discovered frapachinos - became slightly addicted.
retired my mum, made her cry in a good way.
went to Whitby goth weekend and bought a hat that actually suits me
joined roleplay again made new friends
went to nationals for first time in 10 yrs and came first place in my category.
Experienced liposuction...ouch..
Stayed in a hotel by myself for the first time.
Lost stone & half weight
Watched lots of tv series too many to mention.
went to Nottingham nationals came 3rd but walked around in the sun on large campus.
Tried full eye black contact lenses for first time.

Plus so many other injury related stuff and other bits that I can't recall right now, due to the amount of pain killers I'm on, but you get the idea.

Why am I on painkillers I hear you ask? Well had my toes operated on to stop the pain I had when I took a step. I've had the two knuckle bones taken out of my two middle toes and the nail removed from my little toe.




Also before this operation I thought I would show you me walking without a stick.
Yes i'm a bit limpy because of the blister I still have on my thigh (see last post.)

video


So just waiting for my date for my neuroma operation next so will let you know how I get on.
Keep plodding on peeps. x